About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.

To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

September 11th, 2006

DiaryPosted by Jacob Juhl 2006-12-17 10:07:18
Mette is beginning to show side effects of the CIVE treatment. Her general health is okay, but her immune system is very weak. The third round of CIVE is begun after all, because Mette feels okay and hasn't had any fever or infections since the last round of CIVE. She gets several blood transfusions.

The third CIVE treatment goes as planned. Home again on September 14th.

The doctors suggest two more rounds of CIVE, then control scans, and if no tumors have appeared Mette's treatment is ended.
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