About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.

To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

September 26th, 2006

DiaryPosted by Jacob Juhl 2006-12-17 10:20:28
Mette rehospitalised to get blood transfusions.
Feels weak, has red burning rashes in her armpits, on hands and feet. Looks like open wounds and her hands and feet are very sore. Her immune system is almost non-existent despite the Neupogen treatment. It is decided that Mette can tolerate no more chemotherapy. From now on she will be scanned regularly.

This came as a bit of a shock to us because we had figured we would have time to get used to the idea that Mette ended her treatment, that there was no more available treatment, that all we could do was wait for the regular scans, wait for the tumors to reappear...

We are once again informed that DSRCT has a tendency to metastasize....
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