DSRCT

DSRCT

About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.


To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

October 30th, 2006

DiaryPosted by Jacob Juhl 2006-12-17 10:33:03

Meeting about the first control scans.

Multiple metastasis in both lungs. That was quick. The largest tumors are 13mm. Which means they have grown from nothing to 13mm in 6-7 weeks.

Naturally we are devastated. We knew the disease might reappear, but didn't for a second think it would happen so fast...

There is no treatment now. At best there may be some medication that can prolong Mette's life, but she will never be cured. We cannot help but to calculate...if the tumors have grown this much within so little time, when will they have reached the size they had, when Mette was first hospitalised in January? Six months? Eight? A year?

Nothing is certain anymore. Except that cancer will take Mette away from this world.

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