DSRCT

DSRCT

About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.


To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

November ?, 2006

DiaryPosted by Jacob Juhl 2006-12-17 10:40:58

Meeting with doctor about future cause of action.

Chemotherapy is out of the question for now, because Mette's immune system is still very affected by the chemo treatments.

The doctor wants to try something new, a drug called "Sutent", which has not been approved for DSRCT, but others have had positive results with prolonging the lives of Ewing- and DSRCT-patients.

The pills are extremely expensive, and have to be approved by the Second Opinion Commiitee, which takes about a week.

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