DSRCT

DSRCT

About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.


To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

December 14th, 2006

DiaryPosted by Jacob Juhl 2006-12-17 10:44:17

Mette and I often talk about how our mood changes from day to day. Mostly we exist as a normal family with our two children; during the day I go to work part-time, the kids are in kindergarden, we come home, eat, talk, some tv, go to bed, and sometimes we talk about our difficult situation. But generally we have come to terms with the situation, and try to deal with the fact, that in a couple of years or less Mette will not be around anymore.

Yesterday we had one of our sessions with our psychologist from Kræftens Bekæmpels (a danish organisation fighting cancer), and told her that everything was pretty much on the upside, that in our everyday life we try not to think too much about cancer and death. And that was how we felt. But today both of us feel like sh*t, Mette cried on the phone to her mum, I tried to go to work, but had to call in ill from the car, and got out at a parking lot and started crying all of a sudden and couldn't stop again.

Tomorrow may be a really good day.

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