DSRCT

DSRCT

About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.


To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

December 17th, 2006

DiaryPosted by Jacob Juhl 2006-12-17 10:53:06

Finally we have documented all of Mette's past journal on this blog. From now on it will work as a proper diary/blog. As you may have noticed, the names and dates of the earlier posts didn't actual match, as we only started this blog in December, but wanted to document the entire course on the blog.

Mette's general health is really good, she hasn't been better in the past 12-13 months. She has a few side effects from the Sutent pills, but it's really nothing compared to the side effects of chemotherapy.

She has received Sutent pills to last her for the next two months, as the latest scans haven't shown any significant tumor growth.

We are really looking forward to christmas, and Mette has been in a very "christmassy" mood for the past couple of weeks, buying billions of presents for the kids. As she puts it herself, "Maybe this is the last christmas for me..."

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