About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.

To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.


MedicationPosted by Jacob Juhl 2006-12-17 10:55:58

Sutent was developed and has been approved for two types of cancer: advanced renal cell carcinoma (RCC) and gastrointestinal stromal tumor (GIST). To our knowledge is has been tried on patients with Ewing sarcoma and in a few cases on DSRCT patients. In some of these cases tumor growth has stopped for a while, up to seven or eight months. Sutent is taken as pills.


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