About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.

To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

December 21st, 2006

DiaryPosted by Jacob Juhl 2006-12-21 20:09:03

A few days ago Mette started feeling ill - headaches, dizziness, pains in her back, breathlessness - so we went to the hospital yesterday to see what could be done. X-rays were done, and they showed that something was going on in Mettes left lung, maybe fluids or blood. So today she was hospitalised for further examination, and an ultrasound scan. The scan showed a large amount of fluids in the bottom of her left lung. A large quantity of blood (approx. two litres) was drained from the lung, and further scans showed a tumor in the lower region of the lung, approx. 3,75 cm in size.

The last tumor measurements were 11-13 mm, measured on October 26th, meaning that this particular tumor has grown about 2,6 cm in eight weeks. Which is scary.

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