About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.

To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

December 29th, 2006

DiaryPosted by Jacob Juhl 2006-12-29 21:19:48

The morning after Mette came to Skejby Hospital she suddenly started running a fever that reached 40,2 degrees Celcius, at which point it was decided to drain some of the fluids in her lung to relieve some of the pressure. After a couple of hours her general state was more acceptable, and today no more fluids came out through the drain tube. An ultrasound scan showed that there were remaining fluids, but that they were hard to drain out.

We were informed that excessive fluids will probably keep emerging in the lung because of tumor growth, so the doctors may want to insert a permanent drain tube tomorrow. If this works out fine, and Mette doesn't run a fever again, she can finally come home!

Having a drain inserted is a pretty painful affair, so by now Mette is back on Oxycontin and Oxynorm painkillers, which she will probably keep taking for the rest of her life.

I guess this long process has come full circle, as Mette is now almost as sick as when she was first hospitalised in January and is back on the same painkillers, in the same amount, as when this whole thing started.

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