About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.

To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

January 4th, 2007

DiaryPosted by Jacob Juhl 2007-01-04 20:19:29

Mette got a new new lung drain on the 30th, a very large one, to try and drain the coagulated blood and the remaining fluids, and was sent home immediately afterwards. In the last couple of days she has been out of breath as before, and in a lot of pain because of the drain tube, and there doesn't seem to be a lot of fluids to drain out anymore.

So today, on January 4th, the drain was removed, and the doctor decided not to put in another one. Because of tumor growth however, more fluids will probably be produced in the lung, and if Mette starts to feel the effect of this, she will have to have another lung drain. Not anytime soon, we hope!

  • Comments(0)//dsrct.jacobjuhl.dk/#post40