DSRCT

DSRCT

About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.


To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

December 27th, 2006

DiaryPosted by Jacob Juhl 2006-12-27 19:36:44

Mette slept all night with no problems until 5 am, when she woke up in a lot pain and had trouble breathing. During the day she was x-ray'ed to see if more blood was filling the lung, and unfortunately it turned out that she was now bleeding in two places, both the top and bottom of the left lung. She was hurried through more scans and was moved to another hospital (Skejby Sygehus), where they specialize in lung surgery. They plan to give her a lot of transfusions of something that will help her blood coagulate better, over a couple of days, and then drain her lung. They hope that by then her blood will be able to coagulate enough to stop the bleeding.

Let's hope so...

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