DSRCT

DSRCT

About this blog

In January of 2006 my wife was diagnosed with Desmoplastic Small Blue Round Cell Tumor, also known as DSRCT, which is a rare and extremely aggressive form of cancer, usually with poor prognosis for survival.

After months of extensive chemotherapy, several operations, and more chemotherapy we thought she might have an actual chance of surviving. After two weeks of cautious hope our world was destroyed yet again when a scan showed that new tumors were growing in both lungs. There were no more medical means to cure her disease, and eventually she died on January 9th 2007.


To help others who are in a similar situation, my wife and I made this blog, where her entire treatment course is described in detail as a kind of diary. The blog also contains a short description of all the medication that has been part of the treatment.

January 16th, 2007 - the end

DiaryPosted by Jacob Juhl 2007-01-16 21:22:23

On friday, January 5th Mette suddenly felt terrible pains in her lower back and was driven by ambulance to the hospital. During the weekend they tried out a lot of theories to try and explain the pains. On monday they decided there was probably blood in the same lung again, and rushed her off to Skejby Hospital to get yet another drain.

Monday night, January the 8th, the drain was inserted, but the doctors discovered that Mette was bleeding internally all over, and as her lung capacity was now dangerously low, Mette's mother - who was present at the time - was told to call in the nearest family in a hurry, as Mette's body was about to give up.

I arrived at the hospital a little after midnight. Mette was heavily drugged and was gasping for air. She had seemed unconscious for a while, but woke up shortly when I arrived. I talked to her and held her hand, told her I loved her, and that the kids loved her too. She very clearly answered "Yes" a couple of times, but other than that she didn't speak. Her breathing gradually became worse during the next half an hour or so, untill it finally stopped, and Mette left this world for good.

...

Dearest Mette, I loved you more than anything.

Though you didn't really believe in the afterlife, I hope we will meet again somewhere, and I sincerely hope you are still able to look down upon the kids, see how well they are doing, see how they grow up, see how they will always keep a part of you alive within them.

Love, Jacob, your husband and friend.

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Posted by wilma couture 2007-01-21 01:49:32

My thoughts and prayers are with you and your family. We do not know each other but I wish you nothng but peace at the wonderful memories you will be able to draw from.